previous arrow
next arrow
Slider

Wife – Mother – Grandmother – Great Grandmother – Sister – Daughter – Friend

Loved by so many people. We need your help. We need to hear your voice. We are asking for prayers. We are asking for donations. We are asking for kind words and support.

Myra’s Journey Through Primary Progressive Multiple Sclerosis

What’s the big deal? A lot of people are walking around with MS.

Exactly, but Primary Progressive only affects about 10% of MS patients. This one is harder to see the attacks, little chance of remission, and the normal treatments don’t really work so well.

Why help if there is such little hope?

Well, who said that? There is hope! It’s just that we need to come up with the money to purchase the equipment, equipment that standard insurance doesn’t like to cover because this is outside the normal treatments for MS. Why? Because Primary Progressive isn’t your usual MS.

This isn’t just an MS issue. This isn’t just an insurance issue. This isn’t just your average call to action. This is the real life of a woman that has dedicated her life to giving other people every single advantage she could, to help them on their path, to give them a future. All we are asking is to return the favor. Let us give her a future.

We have done the research and we have looked into various equipment that would get the job done. What we have found is that our best option at a low cost will be approximately $3000

We are starting with a $500 fundraiser to get things going. We can raise more. Once we reach that mark, the next step is to $3000. If you can donate more to the cause, please do. The sooner we raise the funds, the faster we can get her the equipment she needs and the better her quality of life.

Want to know more?

https://www.nationalmssociety.org/What-is-MS/Types-of-MS/Primary-progressive-MS

There are a lot of resources on the web. Although we don’t advocate for web medical advice, we have found some great resources for explaining various diseases. So let’s start with the National Multiple Sclerosis Society. Not only can they explain MS but also what PPMS is. Why is it different and what is to be expected.

 

https://www.hopkinsmedicine.org/health/conditions-and-diseases/multiple-sclerosis-ms/primary-progressive-multiple-sclerosis

John Hopkins has always been a well-known and very trustworthy source of information. We appreciate that they explain the various types of MS and how they can be different. They also explain that each case has its own set of complications and severity. This helps explain that one person who is high functioning with MS is not comparable to a person who is not. They are unique circumstances for each and therefore cannot be treated the same.

 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3882958/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4132635/?fbclid=IwAR1972l7w1l4smtwzB-qb_ZKB3sXc28As246or4FPOL2wTOByRZoy4MaFrs

2 separate articles from the same Institute. Little progress has been made to date in disease management for primary progressive MS (PPMS)

The US National Library of Medicine National Institutes of Health has stated that there is not enough research in this area. Although what they do know is that there is support and disease management. This is the key in preventing the decline of the patient.